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Archive for the ‘Stringbean’ Category

I could never imagine my life without Jeremy.  Before I was pregnant with him, I didn’t think that I would be a mom to a boy.  But from the moment I found out I was pregnant with him, I knew he was going to be a boy and I knew I could be his mom and I would love it.  I do love it!  He has this unbelievably sweet spirit.  He loves like no one I have known before.  And he loves everyone, not just his family, but everyone.

When I found out the he was going to be born with Spina Bifida, I was again scared to death.  But I was comforted by the Spirit and I knew it would be okay and I knew I could do it.  And in someways it is even easier than I thought it would be.  Most days it is just life.  He is my boy. But there are some days when I just wish it wasn’t so.  And I wish that somehow there was a miracle.  My heart aches when I see him struggle to play and keep up with other kids his age.  When I think of the things he has been through.  Things I will never fully understand.  Things that I might not even know about.  And things he may never get to do.  This is just sometimes and I try to remember that comfort I felt from the beginning when I do feel this way.  And I pray that he will feel that comfort and hope in his own life too; that he will always know he can do so much.

Well, yesterday and today I have been feeling this way.  And I heard this song, Shine by Rachel de Azevedo Coleman.  It is so beautiful.  It probably makes me just as emotional as my other feelings, but it a much better way.

rhaplink?rhapid=6530420&type=playlist&title=Playlist&from=vcast

(To listen to the song, click on the link above.  It will take you to the Rhapsody website.  Click play on the song Shine, #12.  There will be a pop-up box with the music player, It will ask if you want to join or just listen to 25 free songs.  Click the continue button and it will let you listen for free!)  Here are the lyrics:

SHINE

Sometimes I see you stuck
For such a long time
A daily nothing new
Pretend I don’t mind
With lists of things you’ll never do
Until somehow you do
And you do — you do — you shine

The days and months and years,
they run together
Is it just one day? Or is this forever?
You’ve taught me in your lifetime
More than I’d learned in mine
And you do, you do, you shine

Shine Shine Shine Shine Shine
Shine your light on me
Shine Shine Shine Shine Shine
everyone will see
Shine Shine Shine Shine Shine
I’m so glad you are mine
And you’ll shine in your own time

Well, maybe I’m too close to see you clearly
Or is it now my role to simply believe?
You’re just one of those mysteries
That may never be solved in time
But you do — you do — you shine

And Sammy will do what Sammy will do when Sammy is ready to do it
And Trevor will do what Trevor will do when Trevor is ready to do it
And Lucy will do what Lucy will do when Lucy is ready to do it
And they’ll do it in their own time

Yeah, they’ll Shine Shine Shine Shine Shine
Shine your light on me
Shine Shine Shine Shine Shine
And everyone will see
Shine Shine Shine Shine Shine
I’m so glad you are mine
And you’ll shine, and you shine

I should have posted this last week, but didn’t.  Jer was pretty upset when BYU lost to Florida.

Before the game

Yelling at the defense

Getting Frustrated because FSU keeps scoring!

And we lost!

He was upset for a really long time

Jer really does like watching sports.  When we had TV and would watch a game (any sport) Jer would still with Ryan and watch.  These were actually taken Sunday after the game.  During the game he was pretty happy except for when he threw up.  Which was either because he was so upset by the way BYU played or because he swallowed a peanut whole and gagged himself.

So here it is 2 1/2 weeks after I said I was going to start blogging again and this is only my second post.  Well I guess a couple of weeks is better than a couple of months.

We have been adjusting to having Jer in a spica cast.  He has been a real trooper.  He has learned how to “crawl” around and plays like he used to except that it is on his tummy or side instead of sitting up.  The hardest part has been his diaper situation.  The diaper is just tucked up a hole in his cast and can leak if you don’t change him regularly.

He is in the cast for three months and at 6 weeks (October 1st)  he gets a new one.  We put him in a blue cast because we thought we would have him be Superman for Halloween.  But we think at the six week mark we will change it to red and he can be Lightning McQueen.

Here are some pictures of life in his cast.

Jer in hospital the day we were discharged.

When he isn't crawling, Jer sits in the bean bag.

Spica Car Seat

Jer in car seat

Jer feel asleep playing